B.C. needs an independent agency to investigate civil rights violations in long-term care

This is an opinion column by Paul Caune, an advocate for people with disabilities. For more information about CBC's Opinion section, please see the FAQ.

The biggest problem for citizens living in long-term care (LTC) facilities is they have no practical way to enforce their civil rights.

I knowbecause I experienced this.

For two years, I lived at theGeorge Pearson Centre, an LTC facility for people with disabilitiesin Vancouver, where I did not receive adequate care.

In 2005, I challenged the Vancouver Coastal Health Authority when they told me I couldn't refuse to be moved to the centre. The details of what happened afterare covered in theCBC documentary The Golden Rule.

While I'm no longer a resident at George Pearson, it's not surprising to me to see similar complaints at the same facility.For years, residents and their families have fought for better care at George Pearson. It's been a long and frustrating battle that's beenmade worse because of the COVID-19 pandemic.

My experiences inspired me to co-foundCivil Rights Now, an organization that has proposed since 2012 thatthe B.C. government pass a law similar to the U.S. Civil Rights of Institutionalized Persons Act (CRIPA).

This law would give an independent government agency the authority to investigate conditions in both public or private facilities for disabled citizens. If justified by the evidence, the agency could bring legal action against the owner of the facility. If a judge is convinced that residents' civil rights were violated, the judge could imposelarge fines on the owner.

The U.S. Justice Department hassuccessfullyusedCRIPA litigationsince 1980 to force dozens of LTC facilities, prisons andinstitutions for people with developmental disabilities to stop violating their residents' civil rights.

Canada has no similar law.

Why do we need such a law in B.C.?

B.C. has a long history of abuse in government-run facilities, includingresidential schools for Indigenous children, and institutions for children with disabilities such asWoodlands and the Jericho Hill School for the Deaf.

Even after these dreadful facilities were closed, vulnerable citizens are still put in danger by the government.

In 2011, the B.C. government acknowledged they were unable to determine the extent to which front-line staff in LTC facilities met their legal obligations to get informed consent from residents or the residents' legally recognized medical decision-makers.

In 2012,after a long investigation into health care for seniors, the B.C. ombudspersonconcluded that the "Ministry of Health does not require care staff to report information indicating seniors receiving residential care services are being abused."

Some might say B.C. does not need legislation like CRIPA because the province has a seniors' advocate and the health authorities have patient care quality offices.

But regardless of the findings of any of her investigations, seniors' advocate Isobel Mackenzie can only advisethe government and give it recommendations.

Similarly, patient quality carereview boardscan only make recommendations and health authorities have a conflict of interest when they investigate complaints against themselves.

As for the argument that LTC residents could hire their own lawyers, many simply can't afford to do so.

The CanadianCharter of Rights and Freedoms states that every citizen has a civil right to the equal protection and equal benefit of the law without discrimination based on age or mental or physical disability. But if a citizen living in an LTC facility has no practical way to enforce this civil right, then they don't possess it.

Those who choose to forget the history of abuse in B.C. government-run facilities condemn vulnerable people to repeat it. We cannot expect LTC facilities to honestly investigate or punish their own abuses of power.

When you're disabled and your civil rights are violated, you don't need a good hug you need a good lawyer.

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