'I'm getting my life back,' Kingston man says after long-awaited surgery

After a long and agonizing wait,Bill Bagyan can finally pick up his two-year-old granddaughter, Krystal, for hugs and kisses.

"My granddaughter for her whole life was told thatshe can't jump up on Poppa," hesaid. "She'd hear, 'Watch your knee!' But it's all different now."

For more than a year and a half, the 57-year-old Kingston, Ont., man livedwith a catheter imbedded in his abdomen to help him deal with the pain and discomfort of urethral stricture disease,a narrowing of the passageway through which urine flows out of the body.

• Kingston man waits years for surgery to relieve painful condition
• 'Slosh, slosh, slosh': the maddening, twilight world of medical waiting lists | Neil Macdonald

It's been a long, frustrating experience for Bagyan, whose name mysteriously disappeared from the wait list for the highly specialized surgery to rebuild his urethra, only to have the operation scheduled then cancelled not once but twice.

Five days after CBCfirst published his story on Nov. 8, Bagyan finally underwent the surgery at The Ottawa Hospital.

One month later,he no longer has to wear sweatpants to allow room for a urine bag attached to his leg. Interviewed in his Kingstonapartment, he wore dressslacksand a colourful knitted Christmas vest, and was clearly in an upbeat mood.

"Oh, I feel a lot better," he said. "I can wear proper clothes and I can lift up my granddaughter and wrestle with my older grandson without worrying that the hose would get pulled the wrong way.I'm getting my life back."

A different story

The three-hour operation was a success, though he had pain in his groin area for several days after, and the inside of his cheek is still sensitive and sore from where surgeons removed tissue to rebuild his urethra.

Bagyan said he wasn't prepared for the first time urinating without a catheter.

"Mentally and physically it was weird because I haven't had to worry about that urge in the middle of the night," he laughed. "It's been a learning curve."

Following an investigation by the hospital's patient relations office, Bagyanlearned his surgery hadn't been cancelled on Nov. 4 because the doctor was called away for an emergency, as he'd been told.

"There was apparently someone scheduled for the same surgery, but they only had one set of equipment," Bagyan said. "Theyjust said that to try and appease me."

Bagyanwastold hospital officials didn't know why his name had twice disappeared from the wait list, but that theurology department's new IT system hadposed challenges.

Calling for transparency

Bagyanwould like to see a requirement for hospitals to post surgical wait times for his type of surgery, much like they already do for hip and knee replacements.

"I want open transparency across the board," Bagyan said. "If it's a three-year wait list, then let people watch their number rise on the list.People aren't going to be left in limbo, and I'm going to keep fighting so they do that."

DuringBagyan'slong wait for surgery, his wife, Ann, changedand cleaned the catheter entry point onhis abdomen, andalso helped her husband shower.

"He's getting more energetic and he's going to get more exercise by walking the dog, and he's better emotionally as well," she said. "He was almost suicidal thinking no one cares."

'It's going to be a good 2020'

The Bagyans will spend Christmas at their daughter's farm northof Kingston.

"It's nice to see a smile on his face. He's joking," Ann Bagyan said. "Before, we hadthe curtains drawnall day long.... Nowwe have them open, and it makes me feel good that he's starting to feel there is daylight now."

Bagyan said he has no regrets about going public with his story, and he knows there are hundreds of other men waiting for the same surgery.

Bagyan is already looking ahead to next summer when he can swim again at the family cottage.

"I've got a future, I've got something to look forward to," he said. "I'm not thinking stupid thoughts anymore. I'm happy, and I think it's going to be a good 2020."

After long wait for surgery, Bill Bagyan calls for more transparency in healthcare

5 years ago

Duration 0:56

Bill Bagyan finally had the surgery he needed in November after being dropped from the provincial waitlist twice. He says he's getting used to freedom of movement again, and is calling for better transparency when it comes to surgery waitlists.